The Health Policy Partnership (HPP) has launched a policy toolkit to help pulmonary arterial hypertension (PAH) advocates communicate to decision-makers the case for implementing policy changes that will improve the lives of people with PAH.
Launched at the Annual Pulmonary Hypertension European Conference in Barcelona and developed in collaboration with an expert steering committee, Meeting the needs of people with pulmonary arterial hypertension presents a clear case for change, highlighting four critical opportunities for decision-makers to help people with PAH receive optimal care. It also highlights how health systems can both provide better care overall and become more efficient.
The toolkit is accompanied by a set of advocacy resources including specific factsheets for cardiologists, pulmonologists and rheumatologists.
PAH is a rare and progressive form of pulmonary hypertension characterised by high blood pressure in the pulmonary arteries, which carry blood from the heart to the lungs. It dramatically reduces people’s quality of life, limiting their ability to perform daily tasks and negatively affecting their relationships and mental health. In many countries, a lack of awareness of PAH can lead to late diagnosis, unnecessarily high costs and premature deaths.
There is no cure for PAH, but new therapies offer the opportunity to improve quality of life while reducing costs for the health system. Yet in many countries, people with PAH lack access to these life-saving treatments.
Inaction costs lives. With this policy toolkit, we hope PAH advocates now have a clear path to push for the policy changes needed to tackle the disparities that many people with PAH experience, and to build a future where no one with PAH is left behind.
Read the toolkit
For more information and to view the other resources, please visit the project page.
