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Brain tumours and COVID‑19

HPP co-authored a lay summary of survey findings on how COVID-19 has affected brain tumour patients and carers around the world.

Brain tumours and COVID‑19 policy

Context

The COVID-19 pandemic has forced people across the world to make decisions about how to balance the risk of contracting the virus with meeting other health, social and financial needs. For people with a life-threatening condition such as a brain tumour, this has been particularly challenging.

Some people with brain tumours have been asked to modify their original plan of care in light of the pandemic. Scheduled healthcare visits may have been cancelled, postponed or converted to virtual appointments. In some cases, tests and treatments have also been cancelled, postponed or changed.

The potential impact of this situation is of serious concern to everyone in the brain tumour community. To better understand how patients and carers were feeling about the pandemic, the International Brain Tumour Alliance (IBTA) organised a survey, in collaboration with the Society for Neuro-Oncology’s (SNO) COVID-19 Task Force. This was the first international, multilingual survey asking about the experience of people with brain tumours and their carers during the COVID-19 pandemic.

The survey found that the principal concern among brain tumour patients and carers was the risk of missing out on essential brain tumour care because of the pandemic. It also revealed that many carers experienced an increased care burden as a result of the stresses of the pandemic, particularly social restrictions that left them unable to rely on help from other family members and friends.

Downloads

Report

Brain tumours and COVID-19: the patient and caregiver experience. Lay summary

What we’ve achieved

Authors from the IBTA, the University of Toronto’s Division of Neurosurgery and McMaster University published the survey’s findings in Neuro-Oncology Advances in August 2020.

The IBTA then approached HPP to co-author and produce a lay summary of the findings. This was published during Brain Tumour Awareness Week in October 2020.

Key partners and stakeholders

Authors:

  • Tess Chee, McMaster University
  • Stuart Farrimond, International Brain Tumour Alliance
  • Kathy Oliver, International Brain Tumour Alliance
  • Mathew R. Voisin, Division of Neurosurgery, Department of Surgery, University of Toronto
  • Suzanne Wait, The Health Policy Partnership

The report was published by the International Brain Tumour Alliance, The Health Policy Partnership, the Society for Neuro-Oncology and the University of Toronto’s Department of Surgery.

Project funding

The Health Policy Partnership undertook this project pro bono for the International Brain Tumour Alliance, and as such received no funding for this work.

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